legislation: 102-hr-2045

Congressional bills and resolutions from Congress.gov, filtered to policy areas relevant to environmental, health, agriculture, and wildlife regulation.

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bill_id congress bill_type bill_number title policy_area introduced_date latest_action_date latest_action_text origin_chamber sponsor_name sponsor_state sponsor_party sponsor_bioguide_id cosponsor_count summary_text update_date url
102-hr-2045 102 hr 2045 Human Genome Privacy Act Civil Rights and Liberties, Minority Issues 1991-04-24 1991-04-29 Referred to the Subcommittee on Legislation and National Security. House Rep. Conyers, John, Jr. [D-MI-1] MI D C000714 0 Human Genome Privacy Act - Part A: Definitions - Sets forth definitions for purposes of this Act, including defining "genetic information" to mean any information that identifies all or any part of a genome identifiable to a specific individual. Part B: Rights of Inspection, Correction, Notice, and Authorized Disclosure - Requires a Government agency to permit an individual to inspect and have a copy of any genetic information the agency maintains about the individual. Sets forth procedures for correcting or supplementing genetic information held by an agency. Requires each agency to prepare, and on request provide a copy of, a written notice of genetic information practices. Prohibits an agency from disclosing genetic information except to the individual or the individual's representative, when the individual has authorized disclosure, or as otherwise authorized under the Act. Sets forth procedures for authorized disclosures. Requires an agency that provides by contract or grant for the maintenance, development, analysis, or identification of genetic information to cause the requirements of certain provisions of this Act to be applied to such information. Provides for the rights of incompetents and minors. Part C: Disclosure of Genetic Information Without Authorization - Allows unauthorized disclosure: (1) within an agency for official use; (2) to a medical professional for use in connection with care or treatment of the individual; (3) for specified health and safety reasons; and (4) as directed by a court. 2025-08-26T15:17:04Z  

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