lobbying_activities: 3204173
Data license: Public Domain (U.S. Government data) · Data source: Federal Register API & Regulations.gov API
This data as json
| id | filing_uuid | filing_type | registrant_name | registrant_id | client_name | filing_year | filing_period | issue_code | specific_issues | government_entities | income_amount | expense_amount | is_no_activity | is_termination | received_date |
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| 3204173 | f6a14beb-3b76-4a49-815c-cd56edd2fc3b | Q2 | UNITED SPINAL ASSOCIATION | 12994 | UNITED SPINAL ASSOCIATION | 2024 | second_quarter | CIV | United Spinal signed a comment letter to the FDA in support of a proposed ban on electric shock devices for use on people with disabilities. H.R. 7351 / S. 3747, Removing Access Barriers to Running for Elected Office for People with Disabilities Act H.R. 7389 / S. 3748, Accessible Voting Act of 2024 H.R. 7350 / S. 3749, The Accessibility and Inclusion to Diversity Local Government Leadership Act As a member of the Disability & Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, signed on to a letter to the Director of the U. S. Census Bureau, Robert L. Santos to express our sincere gratitude for the recent decision by the U.S. Census Bureau to halt the proposed changes to the American Community Survey (ACS) disability questions for collection year 2025 and reconsider additional questions for future use. This decision demonstrates a commendable commitment to listening to the concerns of the disability community and ensuring that our voices are heard in the development of policies that directly impact us. As a member of the Disability and Rehabilitation Research Coalition (DRRC), United Spinal, along with numerous other disability organizations, requested a meeting with the Director, National Institutes of Health (NIH), Monica Bertagnolli, M.D. to discuss the implementation of the recommendations of the Working Group on Diversitys Subgroup on Individuals with Disabilities (WGD-SID Recommendations). The letter read in part: These recommendations were unanimously endorsed by the Advisory Committee to the NIH Director (ACD) on December 9, 2022. Several have already been adopted, including the official designation of people with disabilities as an NIH health disparity population on September 26, 2023, but other critical actions, including the creation of a Disability Research Office (DRO), have not yet occurred. We want to help. As a member of the Consortium for Constituents with Disabilities (CCD) Technology and Telecommunications Task Force, United Spinal support a letter the Task Force sent the bipartisan leadership of the Senate Commerce, Science, and Transportation Committee and the House Energy and Commerce Committee in strong support of S.2494 /H.R.4858, the Communications, Video, and Technology Accessibility Act (CVTA). Engaged with the White House and ACL on a range of isssues related to medical supplies and durable medical equipment when celebrating the 25th anniversary of Olmstead at the Department of Justice. | Bureau of the Census,Food & Drug Administration (FDA),HOUSE OF REPRESENTATIVES,Justice, Dept of (DOJ),Natl Institutes of Health (NIH),SENATE | 30000 | 0 | 0 | 2024-07-19T11:45:21-04:00 |