lobbying_activities: 3193767
Data license: Public Domain (U.S. Government data) · Data source: Federal Register API & Regulations.gov API
This data as json
| id | filing_uuid | filing_type | registrant_name | registrant_id | client_name | filing_year | filing_period | issue_code | specific_issues | government_entities | income_amount | expense_amount | is_no_activity | is_termination | received_date |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| 3193767 | 5d2731d9-e044-4c3a-a35c-51a773a232ce | Q2 | NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) | 28264 | NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) | 2024 | second_quarter | PHA | Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. H.R.7383/S.1214: RARE Act. Inflation Reduction Act Implementation. H.R.4408/S.1906: Promising Pathway Act (PPA). Lab-developed tests (LDTs) and genetic testing access. PRV Reauthorization. | Centers For Medicare and Medicaid Services (CMS),Food & Drug Administration (FDA),HOUSE OF REPRESENTATIVES,SENATE | 70000 | 0 | 0 | 2024-07-16T11:20:31-04:00 |