lobbying_activities: 3149296
Data license: Public Domain (U.S. Government data) · Data source: Federal Register API & Regulations.gov API
This data as json
| id | filing_uuid | filing_type | registrant_name | registrant_id | client_name | filing_year | filing_period | issue_code | specific_issues | government_entities | income_amount | expense_amount | is_no_activity | is_termination | received_date |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| 3149296 | 3083ee6c-ff9d-437b-bbf6-f9f304d35c64 | Q1 | NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) | 28264 | NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD) | 2024 | first_quarter | PHA | Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. H.R.7383/S.1214: RARE Act. Inflation Reduction Act Implementation. Rare Pediatric Disease Priority Review Vouchers (RDP-PRV). Pediatric Study Requirements. Promising Pathway Act (PPA). Lab-developed tests (LDTs) and genetic testing access. | Centers For Medicare and Medicaid Services (CMS),Food & Drug Administration (FDA),HOUSE OF REPRESENTATIVES,SENATE | 60000 | 0 | 0 | 2024-04-17T15:26:00-04:00 |