id,filing_uuid,filing_type,registrant_name,registrant_id,client_name,filing_year,filing_period,issue_code,specific_issues,government_entities,income_amount,expense_amount,is_no_activity,is_termination,received_date
3237782,e86e2c46-950b-485d-b41e-eccb79174d92,Q3,"NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)",28264,NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD),2024,third_quarter,HCR,Rare Disease Initiatives. Newborn Screening. Affordable Care Act (ACA) Issues and Enhancements. Step Therapy. Telehealth. Priority Review Voucher Reauthorization. H.R.6892: Medical Nutrition Equity Act of 2023.,"Centers For Medicare and Medicaid Services (CMS),Food & Drug Administration (FDA),HOUSE OF REPRESENTATIVES,SENATE",,60000,0,0,2024-10-15T10:45:24-04:00
3237783,e86e2c46-950b-485d-b41e-eccb79174d92,Q3,"NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)",28264,NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD),2024,third_quarter,MMM,Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.,"Centers For Medicare and Medicaid Services (CMS),Food & Drug Administration (FDA),HOUSE OF REPRESENTATIVES,SENATE",,60000,0,0,2024-10-15T10:45:24-04:00
3237784,e86e2c46-950b-485d-b41e-eccb79174d92,Q3,"NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)",28264,NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD),2024,third_quarter,PHA,Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. H.R.7383/S.1214: RARE Act. Inflation Reduction Act Implementation. PRV Reauthorization. Lab-developed tests.,"Centers For Medicare and Medicaid Services (CMS),Food & Drug Administration (FDA),Health & Human Services, Dept of (HHS),HOUSE OF REPRESENTATIVES,SENATE",,60000,0,0,2024-10-15T10:45:24-04:00
3237785,e86e2c46-950b-485d-b41e-eccb79174d92,Q3,"NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)",28264,NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD),2024,third_quarter,BUD,Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations.,"HOUSE OF REPRESENTATIVES,Natl Institutes of Health (NIH),SENATE",,60000,0,0,2024-10-15T10:45:24-04:00